A new study, brought to my attention by another patient, shows wonderful news for both children and adults with NF1. We finally have evidence that this genetic disease can be seriously improved through dietary intervention. It also gives evidence that supplements added to a bad diet won’t help much.
The study followed NF1 patients for six months, on either the Mediterranean or Western diets. Neither diet impacted the rate of neurofibromas. Then the researchers added 1200 mg (three capsules worth) of turmeric to the diets. Adding turmeric to the western diet did nothing. But adding it to the Mediterranean diet caused a slowing in the buildup of neurofibromas.
Having a diet and a single supplement slow the progression of a genetic disease is wonderful. It means that the disease is not genetic in its symptoms, but epigenetic. Epigenetics is the study of how the body turns off and on genes. The diet and the supplement were able to turn off the progression of neurofibromas.
But what is truly startling is that several of the patients experienced a reversal of existing neurofibromas! That’s not just epigenetic, that’s a switching on of other genes that are significantly repairing previous damage. It opens the door to moving NF1 away from the genetic category, into a metabolic disorder that should be addressed from birth.
In my book, Helping Your NF1 Child: A Parent’s Guide To Neurofibromatosis, I argue for this outlook on the illness. But I did not expect to have this kind of evidence that dietary and lifestyle interventions could reverse the disease.
Here’s the full study available for online reading. It is small and preliminary, but very exciting! We need more studies.