Neurofibromatosis

Thanks for buying my book! I would love to have your honest review on Amazon and elsewhere! When I wrote the book about Neurofibromatosis I got so into the subject that I had one study after another. Even fellow medical practitioners couldn’t make sense of what I’d put together. So I resolved to cut out all the research I’d done from the final book and simply tell parents what I knew in the simplest language possible. 

When I wrote the book about Neurofibromatosis I got so into the subject that I had one study after another. Even fellow medical practitioners couldn’t make sense of what I’d put together. So I resolved to cut out all the research I’d done from the final book and simply tell parents what I knew in the simplest language possible. 

But some parents and medical researchers may be startled by what I’ve written and want to look at the original research themselves. Everything is from medline, and much is due to the wonderful annual reports of neurofibromatosis researchers. Enjoy!

First general information, questions I wanted to answer, and a timeline of NF discoveries. 

First rough draft of the book with research links. Includes extra information on headaches, cancer, and other issues. 

Information on physical NF1 issues.